{"id":8797,"date":"2025-09-29T20:42:47","date_gmt":"2025-09-29T17:42:47","guid":{"rendered":"https:\/\/jordan-cardiac.org\/?p=8797"},"modified":"2025-09-29T20:42:47","modified_gmt":"2025-09-29T17:42:47","slug":"international-models-of-national-arrhythmia-registries","status":"publish","type":"post","link":"https:\/\/jordan-cardiac.org\/en\/international-models-of-national-arrhythmia-registries\/","title":{"rendered":"International Models of National Arrhythmia Registries"},"content":{"rendered":"
International Models of National Arrhythmia Registries<\/div>\n
<\/div>\n
1. United States \u2013 AHA (Get With The Guidelines AFib Registry)<\/div>\n
1. Form: Dedicated electronic case report form (eCRF), separate from physician notes but linked to hospital electronic records.<\/span><\/div>\n
2. Timing: Data collected at admission, at discharge, after procedures (ablation\/device), and at structured follow-ups: 30 days, 6 months, 12 months, then yearly.<\/span><\/div>\n
3. Data entry: Done by trained registry coordinators or nurses, not physicians.<\/span><\/div>\n
4. Outcomes captured: In-hospital complications, discharge medications, recurrence, readmissions, stroke, bleeding, mortality.<\/span><\/div>\n
5. Outputs:<\/span><\/div>\n
\u2022 Visual reports (electronic summary panels) for each hospital.<\/span><\/div>\n
\u2022 Hospital performance comparison reports against national averages.<\/span><\/div>\n
6. Technology: Automatic transfer of patient information (age, diagnosis, labs, medications) from electronic records, with manual entry only for details not available in structured format.<\/span><\/div>\n
<\/div>\n
2. Canada \u2013 CCS Quality Project (Arrhythmia\/Device Registries)<\/div>\n
1. Form: Web-based registry hosted nationally, with short (1\u20132 page) e-forms using tick-boxes and dropdown menus.<\/span><\/div>\n
2. Timing: At admission\/discharge, immediately after ablation or device implantation, and at follow-up points: 30 days, 6 months, 12 months, annually.<\/span><\/div>\n
3. Data entry: Coordinators or data managers extract data from hospital records; not directly by physicians.<\/span><\/div>\n
4. Outcomes: Procedural success, complications, recurrence, readmissions, device performance.<\/span><\/div>\n
5. Outputs:<\/span><\/div>\n
\u2022 Simple visual reports for each center.<\/span><\/div>\n
\u2022 National hospital performance comparison reports.<\/span><\/div>\n
6. Technology: Increasing use of automated transfer from electronic patient files to minimize manual workload.<\/span><\/div>\n
<\/div>\n
4. ESC (EuroHeart \/ EHRA Registries)<\/div>\n
1. Framework: ESC and EHRA promote the EuroHeart project, aiming to harmonize arrhythmia data collection across Europe.<\/span><\/div>\n
2. Form: Structured eCRF covering demographics, arrhythmia diagnosis, management, procedures, and outcomes.<\/span><\/div>\n
3. Timing: Data collected at admission, discharge, after ablation\/device implantation, and structured follow-ups: 30 days, 6 months, 12 months, yearly.<\/span><\/div>\n
4. Data entry: Carried out by registry coordinators or nurses, not by treating physicians.<\/span><\/div>\n
5. Outputs:<\/span><\/div>\n
\u2022 Visual reports for hospitals.<\/span><\/div>\n
\u2022 Hospital performance comparison reports at national and European levels.<\/span><\/div>\n
6. Technology: Key information (age, diagnosis, labs, medications) transferred automatically from hospital records; manual entry only for exceptional details such as complications or reasons for not prescribing anticoagulation.<\/span><\/div>\n
7. Focus: Standardized definitions enable comparison between countries and ensure reliable data for both quality improvement and international research.<\/span><\/div>\n
<\/div>\n
Final Take-Home for Jordan<\/div>\n
All models (AHA, CCS, APSC, ESC) share the same key principles:<\/div>\n
\u2022 Web-based registry, 1\u20132 page forms, mostly tick-boxes.<\/span><\/div>\n
\u2022 Data entry by coordinators, not physicians.<\/span><\/div>\n
\u2022 Timing fixed: admission, discharge, procedures, and structured follow-ups (30 days, 6 months, 12 months, yearly).<\/span><\/div>\n
\u2022 Outputs: visual reports and hospital performance comparison reports.<\/span><\/div>\n
\u2022 Technology: automatic transfer of data from electronic records, with manual completion only where necessary.<\/span><\/div>\n
<\/div>\n
https:\/\/www.heart.org\/en\/professional\/quality-improvement\/get-with-the-guidelines\/get-with-the-guidelines-afib\/get-with-the-guidelines-afib-registry-tool<\/a><\/div>\n
<\/div>\n
https:\/\/bmchealthservres.biomedcentral.com\/articles\/10.1186\/s12913-021-06441-0?utm_source=chatgpt.com<\/a><\/div>\n
<\/div>\n
https:\/\/www.hrsonline.org\/wp-content\/uploads\/2025\/02\/2020-EHRA-Quality-Indicators-for-Adults-with-AFib.pdf?utm_source=chatgpt.com<\/a><\/div>\n
<\/div>\n","protected":false},"excerpt":{"rendered":"

International Models of National Arrhythmia Registries 1. United States \u2013 AHA (Get With The Guidelines AFib Registry) 1. Form: Dedicated electronic case report form (eCRF), separate from physician notes but linked to hospital electronic records. 2. Timing: Data collected at admission, at discharge, after procedures (ablation\/device), and at structured follow-ups: 30 days, 6 months, 12 […]<\/p>\n","protected":false},"author":145,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-8797","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/posts\/8797","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/users\/145"}],"replies":[{"embeddable":true,"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/comments?post=8797"}],"version-history":[{"count":1,"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/posts\/8797\/revisions"}],"predecessor-version":[{"id":8798,"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/posts\/8797\/revisions\/8798"}],"wp:attachment":[{"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/media?parent=8797"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/categories?post=8797"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/tags?post=8797"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}