{"id":9216,"date":"2025-11-15T10:59:53","date_gmt":"2025-11-15T07:59:53","guid":{"rendered":"https:\/\/jordan-cardiac.org\/?p=9216"},"modified":"2025-11-15T10:59:53","modified_gmt":"2025-11-15T07:59:53","slug":"national-heart-failure-registry-nhfr-jo-framework-and-rules","status":"publish","type":"post","link":"https:\/\/jordan-cardiac.org\/en\/national-heart-failure-registry-nhfr-jo-framework-and-rules\/","title":{"rendered":"National Heart Failure Registry (NHFR-JO) \u2013 Framework and Rules"},"content":{"rendered":"

Jordan Cardiac Society (JCS)<\/span><\/p>\n

National Heart Failure Registry (NHFR-JO) \u2013 Framework and Rules<\/span><\/p>\n

(Issued by the JCS Heart Failure Registry Committee, 2025)<\/span><\/p>\n

Purpose<\/span><\/p>\n

The NHFR-JO provides a unified national database for all heart-failure cases in Jordan.<\/span>
\nIt collects standardized data from hospitals nationwide to improve outcomes, benchmark performance, and guide health-policy decisions.<\/span>
\nThe registry is aligned with AHA GWTG-HF (2024) and ESC EORP HF-III (2023) datasets, building upon insights from the Jordan Heart Failure Registry (JoHFR 2025).<\/span><\/p>\n

A. Governance<\/span>
\n\u2022 Lead Organization: Jordanian Cardiac Society (JCS).<\/span>
\n\u2022 Scientific Oversight: JCS Heart Failure Committee with representatives from university, public, and private hospitals.<\/span>
\n\u2022 Participation: mandatory for all centers treating HF patients.<\/span>
\n\u2022 Data Integration: electronic submission via HL7\/FHIR interface or standardized online forms. HL7\/FHIR is the internationally approved system for exchanging medical data between hospitals.<\/span>
\nIt is used in the NHFR-JO according to the official standards of AHA, ESC, and ACC, ensuring secure and standardized data sharing across all centers.<\/span>
\nelectronic submission via HL7\/FHIR interface or standardized online forms.<\/span><\/p>\n

B. Data Entry Requirements<\/span><\/p>\n

Each case must be entered at:<\/span>
\n1. Admission<\/span>
\n2. Discharge<\/span>
\n3. 7-day follow-up<\/span>
\n4. 30-day readmission (if applicable)<\/span>
\n5. 12-month outcome<\/span><\/p>\n

C. Core Data Fields<\/span>
\n1. Patient Identification: \u00a0means recording the patient\u2019s basic hospital details \u2014 a unique registry number, the hospital name, admission number, and the dates of admission and discharge.<\/span>
\n2. Demographics: age, sex, nationality\/residency, smoking, weight, BMI.<\/span>
\n3. Clinical Classification: HF type (chronic \/ acute-on-chronic \/ de novo); LVEF % (HFrEF \u2264 40 \/ HFmrEF 41\u201349 \/ HFpEF \u2265 50); etiology (ischemic \/ hypertensive \/ valvular \/ dilated \/ other).<\/span>
\n4. Comorbidities: HTN, diabetes, CAD, CKD, COPD, stroke, AF, obesity, anemia, others.<\/span>
\n5. Presentation & Vitals: dyspnea, orthopnea, PND, chest pain, SBP\/DBP, HR, SpO\u2082, NYHA class.<\/span>
\n6. Minimum required labs within the first 24 hours:<\/span>
\nBNP or NT-proBNP, creatinine\/eGFR, sodium, potassium, and hemoglobin -these core tests are mandatory in both AHA and ESC heart-failure registries to assess cardiac stress, kidney function, electrolytes, and anemia.<\/span>
\nFerritin is recommended to detect iron deficiency when available.<\/span>
\n7. Echocardiography (for HF registries):<\/span>
\n\u2022 LVEF \u2014 Mandatory.<\/span>
\n\u2022 LV size\/type (e.g., LVEDD), systolic\/diastolic dysfunction classification, MR grade, E\/e\u2032, and PASP \u2014 Recommended optional (as endorsed when available in both AHA 2024 and ESC 2023 updates).<\/span>
\n8. Medications (GDMT):<\/span>
\n\u2022 ARNI \/ ACEI \/ ARB<\/span>
\n\u2022 \u03b2-blocker<\/span>
\n\u2022 MRA<\/span>
\n\u2022 SGLT2 inhibitor<\/span>
\n\u2022 Loop diuretic (dose & route)<\/span>
\nFor each: record : \u00a0Start \/ Continue \/ Contraindicated and note reason if not prescribed (renal function, low BP, cost, etc.).<\/span>
\n9. Device Therapy: ICD\/CRT (Y\/N); if \u201cNo\u201d, record reason (cost, access, or ineligibility).<\/span>
\n10. Discharge Plan:<\/span>
\nCheck and confirm all medications, educate the patient, arrange follow-up within 14 days, and refer to a heart-failure clinic.<\/span>
\n11. Outcomes: in-hospital mortality, length of stay, 30-day readmission, 1-year survival.<\/span><\/p>\n

D. Data Quality<\/span>
\n\u2022 Automatic validation of numeric ranges and mandatory fields.<\/span>
\n\u2022 Data completeness target \u2265 95%.<\/span>
\n\u2022 Monthly random audits and quarterly benchmarking across centers.<\/span>
\n\u2022 No record can be closed without an explanation for missing GDMT or device therapy.<\/span>
\nIn other words, no case can be completed unless the reason for missing heart-failure medication or device therapy is clearly documented.<\/span><\/p>\n

E. Reporting & Recognition<\/span><\/p>\n

Following AHA\u2019s quality model:<\/span>
\n\u2022 Bronze Tier: continuous reporting \u2265 90 days.<\/span>
\n\u2022 Silver Tier:<\/span>
\nData reported for 12 months with proper use of HF medications and 7-day follow-up after discharge.<\/span>
\n\u2022 Gold Tier: 24 months of sustained excellence and advanced indicators (iron therapy, device use, outcomes).<\/span><\/p>\n

F. Key Performance Indicators (KPIs)<\/span>
\n\u2022 GDMT prescription at discharge:<\/span>
\n\u03b2-blocker \u2265 90%; RAASi\/ARNI \u2265 80%; MRA \u2265 65%; SGLT2i \u2265 50% (aim \u2265 80%).<\/span>
\n\u2022 Early follow-up \u2264 7 days \u2265 90%.<\/span>
\n\u2022 Iron assessment\/treatment \u2265 80%.<\/span>
\n\u2022 Documented ICD\/CRT referral \u2265 95%.<\/span>
\n\u2022 In-hospital mortality < 5%; 30-day readmission < 20%.<\/span>
\n\u2022 Data completeness \u2265 95%.<\/span><\/p>\n

G. Privacy & Security:<\/span>
\nPatient data are protected and used only according to privacy regulations in Jordan.<\/span><\/p>\n

H. Education & Support:<\/span>
\nAn authorized national body provides user guides, regular training, and technical support, and reviews reports for accuracy and publication.<\/span><\/p>\n

I. Continuous Improvement<\/span>
\n\u2022 Live dashboards display performance for each center.<\/span>
\n\u2022 Underperforming sites receive corrective guidance.<\/span>
\n\u2022 Annual national summary shared with the Ministry of Health and participating hospitals.<\/span>
\n\u2022 Registry outcomes guide resource allocation, training priorities, and future protocol updates.<\/span><\/p>\n

References<\/span>
\n1. AHA \u2013 Get With The Guidelines\u2013Heart Failure (GWTG-HF) Update 2024.<\/span>
\n2. ESC \u2013 EORP Heart Failure III Dataset 2023.<\/span>
\n3. ACC \u2013 National Cardiovascular Data Registry (NCDR) and ICOE Framework 2024.<\/span>
\n4. JoHFR \u2013 Jordan Heart Failure Registry Final Report 2025.<\/span>
\n5. Jordan Cardiac Society \u2013 National Heart Failure Task Force 2025.<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

Jordan Cardiac Society (JCS) National Heart Failure Registry (NHFR-JO) \u2013 Framework and Rules (Issued by the JCS Heart Failure Registry Committee, 2025) Purpose The NHFR-JO provides a unified national database for all heart-failure cases in Jordan. It collects standardized data from hospitals nationwide to improve outcomes, benchmark performance, and guide health-policy decisions. The registry is […]<\/p>\n","protected":false},"author":145,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-9216","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/posts\/9216","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/users\/145"}],"replies":[{"embeddable":true,"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/comments?post=9216"}],"version-history":[{"count":1,"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/posts\/9216\/revisions"}],"predecessor-version":[{"id":9217,"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/posts\/9216\/revisions\/9217"}],"wp:attachment":[{"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/media?parent=9216"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/categories?post=9216"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jordan-cardiac.org\/en\/wp-json\/wp\/v2\/tags?post=9216"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}