Summary – National Heart Failure Registry (NHFR-JO) – Core Data Fields Presented by: Dr. Kais Al Balbissi, MD, FACC, FSCAI, FESC
Summary – National Heart Failure Registry (NHFR-JO) – Core Data Fields
Presented by: Dr. Kais Al Balbissi, MD, FACC, FSCAI, FESC
Chairman, Scientific Committee – Jordan Cardiac Society (JCS)
Source: JCS Taskforce Presentation, “Jordan Cardiac Society Chest Pain Care Protocol Website”
Keynotes :
1. Patient Identification
• Registry ID, Hospital Name, Admission Number
• Admission & Discharge Dates recorded for every case
2. Demographics
• Age, Sex, Nationality/Residency
• Smoking Status (Current / Former / Never)
• Weight (kg) and BMI calculated automatically
3. Clinical Classification
• Heart Failure Type: Chronic / Acute-on-Chronic / De Novo
• De Novo ≈ 11 % in JoHFR, commonly post-MI or myocarditis
• LVEF (%): HFrEF ≤ 40 / HFmrEF 41–49 / HFpEF ≥ 50
• Etiology: Ischemic / Hypertensive / Valvular / Dilated / Other
4. Comorbidities (checkbox)
Hypertension – Diabetes – CAD – CKD – COPD – Stroke – AF – Obesity – Anemia – Other
5. Presentation & Vitals
• Dyspnea, Orthopnea, PND, Chest Pain (Y/N)
• SBP/DBP, HR, O₂ Sat %, NYHA Class I–IV
6. Key Laboratory Tests (First 24 h)
• BNP / NT-proBNP
• Creatinine, eGFR
• Sodium, Potassium
• Hemoglobin, Ferritin
7. Echocardiography
• LVEF %, LVEDD (mm), E/e′, MR grade, PASP (mmHg)
8. Guideline-Directed Medical Therapy (GDMT)
• ACEI/ARB/ARNI – Start / Continue / Contraindicated
• Beta-Blocker – Start / Continue / Hold (if low BP/bradycardia)
• MRA – Start / Continue / Contraindicated (based on K⁺, eGFR)
• SGLT2 Inhibitor – Start / Continue / Not Available / Cost Barrier
• Loop Diuretic – IV / Oral form; record dose & frequency
⚙ All four pillars follow ESC EORP HF-III and AHA GWTG-HF standards.
9. Device Therapy
• ICD (Y/N) – CRT (Y/N)
If No → Reason (Cost / Access / Not Eligible)
10. Discharge Plan
• Medication reconciliation done (Y/N)
• Patient education provided (Y/N)
• Follow-up ≤ 14 days (Y/N)
• Referral to HF Clinic (Y/N)
11. Outcomes Tracking
• In-hospital mortality (Y/N)
• Length of stay (days)
• 30-day readmission (Y/N)
• 1-year mortality (Y/N) (at 12-month follow-up)
Technical Notes
• Numeric fields auto-validated within reference ranges
• Mandatory fields highlighted for compliance
• Data exchange built on HL7/FHIR standards for EMR integration
• Dataset fully harmonized with AHA / ESC registries for international comparability
